On Saturday, July 10, friends and family of Mia Hanley, a 5-year-old girl living with Pompe Disease, along with the management at Texas Roadhouse in Cranston, will host a day filled with family fun and hot cars.
Diagnosed with the rare form of Muscular Dystrophy at just six months, Mia is lucky to be alive today thanks to an extensive treatment she receives twice a month. The proceeds from this event will help with Mia's expenses related to her illness as well as fund research at Duke University dedicated to find a cure for Pompe.
This event is also celebrating Mia's 1/2 Birthday which is July 7th. The day Mia turned 6 months old, she received her first infusion. This was her second chance at life marking it a very significant day in her life. As she turns 5 1/2, we will celebrate five years since her first infusion.
Please join us between 10 a.m. and 2 p.m. at the Texas Roadhouse in Cranston as we raise money for this beautiful little girl. Along with the dozens of show cars on hand, the event will also include face painting, a bounce house, an appearance by Ariel the Little Mermaid and crafts for the kids; Cranston Police vehicles, including the Mobile Command Unit; an information tent dedicated to educating the public about Pompe disease raffle prizes, a bake sale and much more!
Vendor tables will also be on set up and will include representatives from Lia Sophia Jewelry, the Pampered Chef and Stitch Me This. If you are interested in renting vendor space, contact Melissa Loiselle.
Please save the date for this event, tell your friends and help us spread the word about Mia's Miracle!
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Can't wait! Need me to make something for the bake sale? I do a mean rhubarb cake and apple crisp :)
ReplyDeleteKim